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  • 07-30-16

    Two years later, Ice Bucket Challenge yields huge dose of hope for Minnesotans with ALS

    People who had waited a year or more for gear to help them live more independently can now get a key piece of equipment delivered within days.

    Two summers ago, Facebook pages across the country were saturated with videos of people dumping buckets of ice water over their heads in a fundraiser for ALS, the fatal neurodegenerative disorder popularly known as Lou Gehrig’s disease.

    At the time, the Ice Bucket Challenge was derided by many as little more than a marketing gimmick, a feel-good way for celebrities and others to appear altruistic without having to do much of anything. Critics pointed out that many of those who posted videos never even mentioned the disease or how to help the cause.

  • 07-30-16

    The ice bucket challenge's scientific success restored my faith in fundraising

    FILE - In this Aug. 7, 2014, file photo, two women get doused during the ice bucket challenge at Boston’s Copley Square to raise funds and awareness for ALS. The ALS Association says money raised through the challenge helped fund a project that has discovered a gene linked to the disease. (AP Photo/Elise Amendola, File)

    It is absolutely thrilling that money raised by the “ice bucket challenge” – that seemingly overblown, internet-BS game parading as a fundraiser for ALS – has actually caused a real thing to happen: more than $100m in donations funded distinct scientific progress in our understanding of the disease.

    This contradicts all my feelings about gimmick fundraisers, which I, and many others, usually find trite or even annoying. It can feel like money keeps getting shoveled in to the charity-industrial complex with very little in the way of progress coming out.

  • 07-29-16

    Remember the ice bucket challenge? ALS researchers do — with gratitude

    "The ALS Ice Bucket Challenge enabled The ALS Association to invest in Project MinE's work to create large biorepositories of ALS biosamples that are designed to allow exactly this kind of research and to produce exactly this kind of result," says the group. Eventually, all this research and data may lead to a cure.


  • 07-27-16

    The Ice Bucket Challenge Helped Fund an ALS Research Breakthrough

    A UMass researcher’s team found a new gene associated with the disease.

    Marty Walsh Ice Bucket Challenge

    If you doused yourself with ice water back in 2014, it wasn’t all for nought. The ALS Association announced Monday that money raised through the Ice Bucket Challenge helped researchers find a new gene associated with ALS, challenging critics who called the viral campaign nothing more than a social media stunt.

  • 07-27-16

    UMMS-led discovery of ALS gene funded by Ice Bucket Challenge; nets global attention

    The discovery of an ALS gene by UMass Medical School scientist John Landers, PhD, and a large, international research team, funded by the viral Ice Bucket Challenge campaign, is garnering headlines around the globe. The research led by Landers and Jan Veldink, PhD, at University Medical Center Utrecht in the Netherlands, was supported by The ALS Association through Project MinE, an international collaboration for gene discovery in ALS.

  • 07-27-16

    Ice Bucket Challenge funds ALS gene discovery

    "Global collaboration among scientists, which was really made possible by ALS Ice Bucket Challenge donations, led to this important discovery," one of the lead researchers, John Landers, Ph.D., of University of Massachusetts Medical School in Worcester, Massachusetts, said in a statement. "It is a prime example of the success that can come from the combined efforts of so many people, all dedicated to finding the causes of ALS. This kind of collaborative study is, more and more, where the field is headed."

  • 07-26-16

    Ice Bucket Challenge funds lead to ALS discovery

    Boston City Councillor Tito Jackson, right, leads some 200 people in the ice bucket challenge at Boston's Copley Square, Thursday, Aug. 7, 2014 to raise funds and awareness for ALS. (AP Photo/Elise Amendola)

    The ALS Association contributed $1 million to Project MinE, to launch the U.S. branch of the 15-country collaboration to sequence the entire genome of 15,000 ALS patients and 7,500 individuals without ALS. reported on the project in 2015; their goal is to find as many genetic factors that contribute to ALS, also known as Lou Gehrig’s disease, as possible, to then identify potential targets for therapy.