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Our Team

Brenda-Wong.png

Brenda Wong, MD
Professor of Pediatrics and Neurology
Clinic Director, Neurologist


The Duchenne Program is carried out under the leadership of neurol

ogist Brenda Wong, MD. Dr. Wong received her medical degree from the National University of Singapore and was board certified in Pediatrics in the U.K. (MRCP in Pediatrics). She completed her fellowship training in neurology at Cincinnati Children's Hospital Medical Center and continued to direct the Comprehensive Neuromuscular Center there for 19 years. Driven by the opportunity to focus more fully on her passion — Duchenne and Becker muscular dystrophies — Dr. Wong relocated to Massachusetts in May 2018 to become the founding director of the Duchenne Program. “It has been a dream of mine to have a clinic and research program that is fully dedicated to this disease and research into treatments and a cure. We are committed to providing seamless, full-spectrum care for everyone from infants to adults with Duchenne.”


Physicians/Medical Specialists

  • Juan Ding

    Juan Ding, OD, PhD

    Optometry

    Dr. Ding is a clinician and researcher who aims to improve eye care for her patients. Her specialties include comprehensive eye exams for both adult and pediatric patients; diabetic eye exams, and specialty contact lens fittings. Before joining UMass Memorial Medical Center and UMass Medical School, Dr. Ding completed a post-doctoral research fellowship at Massachusetts Eye and Ear in Boston. She is a graduate of Tsinghua University in Beijing, China; earned her PhD at Ohio University and her Doctor of Optometry at New England College of Optometry. Dr. Ding enjoys seeing DMD patients referred by the DMD clinic, as these kids travel with their families all over the country to see Dr. Wong, and it is always heartwarming to see families stick together to cope with this debilitating condition.

  • Michael Fahey

    Michael Fahey, MD

    Cardiology

    Dr. Fahey is the chief of pediatric cardiology at UMass Memorial Medical Center and an associate professor at UMass Medical School. He received his medical degree from Columbia University College of Physicians and Surgeons. He completed his residency program at the Fletcher Allen Healthcare-Medical Center of Vermont and his fellowship training at Mount Sinai Medical Center. Dr. Fahey enjoys being a part of the Duchenne Program’s coordinated care model, collaborating with colleagues to treat the whole patient. “There’s nothing else quite like it around here.”

  • Penny Feldman

    Penny Feldman, MD

    Endocrinology

    Dr. Feldman is a pediatric endocrinologist whose clinical interests include diabetes & metabolism, Down Syndrome and thyroid disorders. She is also an assistant professor at UMass Medical School. Dr. Feldman graduated from Albert Einstein College of Medicine, completed her residency training at Columbia Presbyterian Medical Center and a fellowship at Hasbro Children's Hospital, Brown University.

  • Terence R. Flotte

    Terence R. Flotte, MD

    Pulmonology

    Dr. Flotte began his career in pediatric pulmonology and biomedical research at Johns Hopkins and the University of Florida before joining UMass Medical School in 2008 as the executive deputy chancellor, provost and dean of the School of Medicine. An internationally known pioneer in human gene therapy, Dr. Flotte is investigating the use of gene therapies for several genetic diseases. “We are enormously proud to host the Duchenne Program at UMass Medical School, and it has been a joy to get to know and help these patients and their families.”

  • Ted Kremer

    Ted Kremer, MD

    Pulmonology

    Dr. Kremer is chief of the Division of Pediatric Pulmonary Medicine, and director of pediatric sleep medicine at UMass Memorial Medical Center, and an associate professor at UMass Medical School. He earned his medical degree at the University of Iowa, College of Medicine, completed residency training at Children’s Medical Center of Dallas and a Pediatric Pulmonary fellowship at Riley Children’s Hospital in Indianapolis.  As a pulmonary and sleep medicine physician, Dr. Kremer enjoys the many unique aspects of caring for patients with DMD and the long-term relationships established with his patients and families.

  • Yvonne Shelton

    Yvonne Shelton, MD

    Orthopedics

    Dr. Shelton is chief of the Division of Pediatric Orthopedics at UMass Memorial Medical Center and an assistant professor at UMass Medical School. She earned her medical degree at George Washington University; completed residency training at Columbia Presbyterian Medical Center and New York University Medical Center; and fellowship training in pediatric orthopedics at the A.I. DuPont Institute. Dr. Shelton adds, “I am pleased and excited to be part of the DMD clinic. My favorite thing is meeting the patients and their families from both far and near. I look forward to supporting them through their healthcare journey.”

  • Jeffrey Shih

    Jeffrey Shih, MD

    Cardiology

    Dr. Shih is a cardiologist whose clinical interests include cardiovascular disease, cardiomyopathy, heart failure and transplantation. He serves as medical director of the ventricular assist device program as well as the advanced heart failure program at UMass Memorial Medical Center and is an assistant professor at UMass Medical School. Dr. Shih completed his medical degree, residency and fellowship training at Emory University School of Medicine.

Other Medical Providers

  • Jennifer Hall

    Jennifer Hall

    Dietician

    Jennifer Hall is a pediatric dietician at UMass Memorial Medical Center, as well as part of the Duchenne muscular dystrophy clinic.  She earned her undergraduate degree in Food and Nutrition from Framingham State University and completed her dietetic training at FSU under their Coordinated Program while pursuing her Bachelor of Science.  Jennifer has specialized in pediatrics throughout her career while working in a variety of settings including here at UMass, in private practice, industry, schools, and within the community.  “I’m dedicated to helping all families, especially DMD patients, learn how nutrition can play a vital, therapeutic role in optimizing health.”

  • Robyn dos Santos

    Robyn dos Santos, MA, OTR/L

    Robyn dos Santos has over 20 years working as a licensed Occupational Therapist, specializing in pediatric care. A graduate of Worcester State University, Robyn went on to pursue a Master's Degree in Counseling Psychology with a concentration in Child/Family Therapy from Assumption College. "I have always tried to practice holistically, viewing the family as an integrated, evolving system." Robyn is also a Certified Mindfulness Practioner. "I am honored to be a part of this talented and committed team, offering extraordinary care to patients and families. The families I have met have taught me so much about strength, resiliency, and creativity to live life to the fullest".

  • Mike Kiefer

    Mike Kiefer, PT, DPT

    Before joining The Duchenne Program as a founding team member in July 2018, Mike worked at the neuromuscular clinic at Cincinnati Children’s Hospital Medical Center and Mt. Sinai Roosevelt. He received his doctor of physical therapy at University of Vermont and is planning to pursue a PhD in rehabilitation sciences in the fall of 2019. Mike’s favorite part of working at The Duchenne Program is meeting the boys and young men with Duchenne. “I’ve met so many incredible guys who are starring in school plays, skiing, playing sled hockey, singing, starting their own businesses, playing power soccer, traveling, and going off to college.”

  • Jacqueline Raftery

    Jacqueline Raftery, CCLS

    Child Life Specialist

    Jackie is the child life specialist in the Duchenne muscular dystrophy clinic. She received her bachelor's degree from Assumption College and is currently a master's candidate at Boston University. Jackie helps to make the clinic more youth and young adult-friendly by providing developmentally appropriate activities during clinic visits. Play is a vital part of learning and makes visiting the clinic a more fun experience! Jackie is also available to discuss how patients and siblings are coping with having Duchenne and support families in finding coping mechanisms. "The DMD team at UMass is committed to providing patient and family-centered care through the team's approach of supporting the whole person, physically and psychosocially."

  • Amy Roberts

    Amy Roberts, RN

    Amy joined the Duchenne Program in September 2018, shortly after it launched. She began her medical career in 2014 as a phlebotomist and transitioned to nursing after earning her degree at Southern New Hampshire University. Amy's dedication to the families who visit the Duchenne Program has been evident since the day she joined the team. “These families are my heroes, and if I can do even one small thing to make life a little easier for them, I’m happy to do that.”

  • K. Courtney Shellenbarger

    K. Courtney Shellenbarger, NP

    Courtney has been working side-by-side with Dr. Wong for more than six years. In May 2018, she moved from Ohio to Massachusetts to help launch the Duchenne Program. As a pediatric nurse practitioner with more than 10 years of experience, Courtney sees and treats patients, but she also plays a big role behind the scenes to help keep the program’s gears moving smoothly. She loves collaborating with her colleagues to deliver top-notch care to patients and their families. “Our core team works together so closely, it’s kind of like we’re all part of the same brain.” 

  • Emily Young

    Emily Young, NP

    Emily has been a pediatric nurse practitioner at UMass for 14 years, focusing on pediatric pulmonary and pediatric sleep clinics. Previously, she was a nursing team leader for complex patients in pediatric and neonatal intensive care units. She earned her undergraduate nursing degree from the University of Pennsylvania and her graduate degree from Northeastern University. “I enjoy helping children with chronic pulmonary diseases and their families be as healthy as possible and have a great quality of life!”

Administrative Staff

  • Sarah Figueira

    Sarah Figueira

    Clinical Research Project Director

    Sarah coordinates clinical trials for the Duchenne Program. She provides families with information about the clinical trials offered here as well as any other research opportunities aimed to help the Duchenne community. She received her BS at the University of Cincinnati and an MBA at the University of Phoenix. She is CCRC certified through the Association of Clinical Research Professionals. Sarah worked with Dr. Wong at Cincinnati Children’s Hospital Medical Center and couldn’t resist the opportunity to be a founding team member of the Duchenne Program. “I followed Dr. Wong because of her total commitment to her patients and a chance to continue to be mentored by her in a new environment.”

  • Barbara Santiago

    Barbara Santiago

    Research Medical Assistant

    Formerly a licensed aesthetician, Barbara calls her decision to go back to school to become a medical assistant the best career choice she has ever made. Since graduating from Porter & Chester in 2011, she has worked in a variety of health care settings. She is fluent in English and Spanish. “Whether I’m having a good day or bad day, one thing is certain: I love coming to work, especially on clinic days. Getting to know our little warriors and meeting their families brings me joy and satisfaction.”

  • Sandra Mines

    Sandra Mines

    Administrative Assistant

    Sandy is a team player and a vital part of current operations for the DMD Clinical Program. She coordinates the administrative processes, is the central hub of all communication and is the first point of contact for our families that have questions or require information. “Being part of the DMD team more than fulfills that need – I have had several jobs but being able to support an AMAZING team that makes such a difference in so many lives is very exciting.”

  • Carol Stamm

    Carol Stamm

    Clinical Research Coordinator

    Carol recently joined the UMass DMD team and is pleased to be part of such a dedicated team. She has been a Clinical Research Coordinator for many years, having spent the majority of them at the University of Rochester Medical Center in Rochester, NY. She has experience in many clinical research fields including neurodevelopmental and behavioral pediatrics. “This provides me with a solid foundation to continue my passion for working with and supporting the families living with DMD.”