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Duchenne Program’s Blog

Making Mindful Food Choices in Uncertain Times

Posted On: Tuesday, June 09, 2020 Posted By: Jennifer Hall Tags: Duchenne

Maintaining good nutrition can be a challenge. Period. Throw a global pandemic into the mix, and fueling one’s family with functional food choices can feel positively Herculean. “Food is a sense of security, especially at times like these,” explains pediatric dietician Jennifer Hall, a team member of The Duchenne Program at UMass Medical School, Hall is dedicated to helping families “learn how nutrition can play a vital, therapeutic role in optimizing health.” As COVID-19 restrictions continue to severely alter the way we move through the world, Hall offers some guidance for thinking about the big picture— and putting nutrition into perspective—as well as myriad minute details to guide your gut in choosing all things gastronomic. Bon Appetit!

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How The Duchenne Program Came to Be — A Note from Tracy and Benjamin Seckler, Charley’s Fund Co-Founders

Posted On: Thursday, July 04, 2019 Posted By: Tracy Seckler Tags: Charley’s Fund, Duchenne

The Duchenne Program’s Founding Director Dr. Brenda Wong with Charley and Tracy Seckler.

Our son Charley was diagnosed with Duchenne muscular dystrophy in August 2004, when he was three years old. We were crushed to learn that Charley has Duchenne, an aggressive and progressive muscle wasting disease that is 100 percent fatal. But at least we felt assured that he would have nearby access to the best medical care available, and opportunities to participate in clinical trials for new medicines. Our hometown of Alford, Massachusetts is just a two-hour drive from both New York City and Boston, two cities known as hubs for medical care and innovation.

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