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Strengthening Translational Research in Diverse Enrollment (STRIDE)

Strengthening Translational Research in Diverse Enrollment (STRIDE) is a partnership of the Clinical and Translational Science Awards (CTSAs) at the University of Massachusetts Medical School (UMass), the University of Alabama at Birmingham (UAB), and Vanderbilt University School of Medicine along with the Community Campus Partnerships for Health (CCPH), an international leader in community-engaged research. The STRIDE project aims to create tools that can be shared with researchers to help them recruit and deliver informed consent that is culturally and literacy appropriate.

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The Element of Simulation in STRIDE

The Element of Simulation in STRIDE

The Role of Simulation in STRIDE

The research team component of the STRIDE intervention hinges on an innovative application of medical simulation to improve the cultural sensitivity of those recruiting and enrolling diverse participants.

Through this process, trained community members served as “Acting Research Participants” similar to the well-established standardized-patients methodology. Acting Research Participants engage with research assistants in mock recruitment scenarios for enrollment in a clinical trial in the setting of the simulation center, which is capable of replicating common recruitment venues and providing hands-on, experiential learning in a structured environment.

Practice in this safe environment promotes learning critical communication skills to address emotionally sensitive, cross-cultural issues that arise in the process of informed consent. This process was developed through a bi-directional partnership with our community partners.

The Element of Storytelling in STRIDE

The Element of Storytelling in STRIDE

The Role of Storytelling in STRIDE

“Storytelling is a proven behavioral intervention where people in a community tell their health stories to others to improve health outcomes.”

Process

  1. Interview guides were developed based on the thematic analysis developed in focus groups that occurred at the University of Alabama-Birmingham.
  2. Vanderbilt selected individuals to participate in one-on-one on camera interviews, and these interviews were conducted by the UMass Storytelling Team.
  3. The Storytelling team conducted the video-recorded in depth interviews based on the alignment of the themes developed and the content of their story. We coordinated the interviews to be convenient to the individual participants. We staggered the video interviews so that we can adapt our process as necessary. During the interviews, each participant was reminded to describe their best stories.
  4. The videos were subsequently divided into “story units”, or themes (reason for participation, informed consent, etc.
  5. Each story unit will be systematically rated and reviewed by members of the UMass team. The storytellers will also be rated by community members and other outside evaluators in order to pick the best “stories” that will be packaged into the final intervention.

Learn about the role of Storytelling in STRIDE in these 4 videos.

Why should I participate? Video length: 2 minutes 30 seconds

What should I know before participating? Video length: 1 minute 30 seconds

Is it safe to participate? Video length: 1 minute 30 seconds

Who should be participating in Research? Video length: 2 minutes

The Element of eConsent

The Element of eConsent

The Use of eConsent

Electronic Consent (eConsent) is a new way of helping patients consent for a research study online. Patients can sign an eConsent document on site or at home using a computer or tablet. eConsent may also use to help patients better understand what to expect from the study.

The STRIDE intervention uses adapts eConsent, based in the REDCap platform, to be culturally sensitive to African American and Hispanic communities. REDCap is a secure, web application that lets researchers build and manage surveys and databases. REDCap meets standards for patient information security (HIPPA) and patients can access REDCap eConsent forms on a computer, smartphone, or tablet.

By moving consent online, we have the chance to include things like pictures, audio, and avatars to help participants feel more comfortable and have a better understanding of the risks and benefits of a study.

Use of eConsent also lets participants review information at their own pace, which may help participants to feel less anxious and less pressured to participate.

The Role of Community Investigators

The Role of Community Investigators

The Role of Community Investigators

Community involvement and input is a key part of the STRIDE project. Each of the 3 STRIDE sites identified 1-2 Community Members who would provide feedback on all parts of the project. In addition, Community Investigators from each site meet monthly. Community Investigators will also be trained to evaluate standardize patient encounters and will help to train research assistants in the studies partnered with STRIDE.

Start by Taking the Implicit Association Test (IAT)

Start by Taking the Implicit Association Test (IAT)

The Implicit Association Test (IAT)

The Implicit Association Test (IAT) measures attitudes and beliefs that people may be unwilling or unable to report. It may be especially interesting if it shows that you have an implicit attitude that you did not know about. IAT does this through a test that measures the strength of associations between concepts (e.g., black people, gay people) and evaluations (e.g., good, bad) or stereotypes (e.g., athletic, clumsy).

The IAT is brought to you by Project Implicit, founded in 1998 by three scientists – Dr. Tony Greenwald (University of Washington), Dr. Mahzarin Banaji (Harvard University), and Dr. Brian Nosek (University of Virginia). Project Implicit Health (formerly Project Implicit Mental Health) launched in 2011 and is led by Dr. Bethany Teachman (University of Virginia) and Dr. Matt Nock (Harvard University). The mission of Project Implicit is to educate the public about bias and to provide a “virtual laboratory” for collecting data on the internet. Project Implicit scientists produce high-impact research that forms the basis of our scientific knowledge about bias and disparities.

In the video below, we learn about the IAT and the important data it has generated. Video length: 5 minutes

This video is provided by BruinX, the Research and Development unit within University of California, Los Angeles (UCLA)'s Office of Equity, Diversity and Inclusion. 

Click here to take the Implicit Association Test (IAT)

Go Further: Current Programs for Participation

Go Further: Current Programs for Participation

Go Further: Current Programs for Participation

This page was last updated on Feb 19th, 2021