Terence R. Flotte, MD, was among a panel of cystic fibrosis experts that provided a congressional briefing on the benefits of the Cystic Fibrosis Foundation’s model of specialized, coordinated care and its innovative strategies for drug development, and how they can serve as an example for other rare, chronic diseases.
Dr. Flotte, the Celia and Isaac Haidak Professor of Medical Education, executive deputy chancellor, provost and dean of the School of Medicine, was joined on the panel by Carlos Perez, MD, director of the Cystic Fibrosis Care Center at Geisinger Medical Center in Danville, Penn.; Paul Negulescu, PhD, vice president for research at Vertex Pharmaceuticals; and Megan Stacy, who has cystic fibrosis.
The briefing was co-sponsored by Senators Edward Markey (D-Mass.) and Kelly A. Ayotte (R-NH) and Congressional Cystic Fibrosis Caucus co-chairs Representatives Tom Marino (R-PA) and James McGovern (D-Mass). Robert J. Beall, PhD, president and CEO of the Cystic Fibrosis Foundation, moderated.
Read more about the presentation, Personalized Medicine and Quality, Coordinated Care: The Cystic Fibrosis Model, on the Cystic Fibrosis Foundation’s website.